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hemophilianewstoday
3 天
This year’s annual visit to my hemophilia treatment center
Columnist Jennifer Lynne has made her annual in-person visit to her regional hemophilia treatment center, with some adjustments and news.
hemophilianewstoday
3 天
Altuviiio bests others as hemophilia A factor replacement therapy
Altuviiio (efanesoctocog alfa) may work better than other treatments as a hemophilia A factor replacement therapy, a study ...
hemophilianewstoday
4 天
Celebrating my life partner and best friend on our anniversary
Columnist Joe MacDonald celebrates the 32nd anniversary of his marriage to Cazandra — and the bond that's helped them deal with hemophilia.
hemophilianewstoday
6 天
Let’s talk about potential bleeding risk after hysterectomy
Sharing a personal anecdote, columnist G Shellye Horowitz discusses a potential bleeding risk that develops weeks after a ...
hemophilianewstoday
6 天
Preventive treatment with Altuviiio better than Hemlibra: Analysis
Preventive treatment with Altuviiio led to lower bleed rates and better joint health than Hemlibra in hemophilia A patients ...
hemophilianewstoday
7 天
What do people with hemophilia actually need?
Although loved ones have good intentions, columnist Alliah Czarielle corrects some misconceptions about what people with hemophilia need.
hemophilianewstoday
10 天
In trial, giroctocogene fitelparvovec safely prevents hemophilia A bleeds
No bleeding episodes were seen over three years for 64% of hemophilia A patients given giroctocogene fitelparvovec in a trial ...
hemophilianewstoday
10 天
Why travel scholarships matter to the hemophilia B community
With travel scholarships available for the 2025 Coalition for Hemophilia B Symposium, columnist Jennifer Lynne encourages readers to attend.
hemophilianewstoday
11 天
Embracing moments of joy amid the ever-present reality of hemophilia
Columnist Joe MacDonald reflects on moments of joy from one of his oldest son's first Christmases. It was a welcome respite from hemophilia.
hemophilianewstoday
13 天
Phase 1/2 clinical trial of BE-101 now enrolling hemophilia B patients
The two-part Phase 1/2 trial — dubbed BeCoMe-9 (NCT06611436) — was designed to assess the safety and clinical activity of a ...
hemophilianewstoday
13 天
Why I ditched fashion for sensible shoes
To protect her ankles from internal bleeding and pain, columnist G Shellye Horowitz opts for sensible shoes lined with custom ...
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